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Re: Our Story...
Wow thats some story. You are a strong woman. I know too well what it's like wanting to know whats wrong with your child. Alexis is 10 yrs old and we still don't have all the answers. They know she has pulmonary stenosis and reactive airway disease. They have no idea why she's so tiny she's 35 pounds and 39 1/2 inchs tall. She hasn't grown in 5 years. She's had a gtube since hse was 3.
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