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Old 11-21-09, 07:40 AM   #1 (permalink)
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Cystic Fibrosis
I haven't been on much because we live in the doctors office, hospital and therapists come to the house 4 times a week.

Does anyones LO have Cystic Fibrosis or Shwachman Diamond Syndrome? the youngest is being tested for these and other rare pancreatic disorders. Just wondering if anyone else has been through this testing or if their LO was Dx'd in the newborn screening?
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Old 11-22-09, 09:08 PM   #2
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I'm so sorry to hear that. I don't know much about either of those. I hope y'all get some answers and some good news soon.
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Old 11-23-09, 03:22 PM   #3
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cartmansmom understands without a sense of caring, there can be no sense of community.cartmansmom understands without a sense of caring, there can be no sense of community.cartmansmom understands without a sense of caring, there can be no sense of community.cartmansmom understands without a sense of caring, there can be no sense of community.cartmansmom understands without a sense of caring, there can be no sense of community.cartmansmom understands without a sense of caring, there can be no sense of community.cartmansmom understands without a sense of caring, there can be no sense of community.cartmansmom understands without a sense of caring, there can be no sense of community.cartmansmom understands without a sense of caring, there can be no sense of community.cartmansmom understands without a sense of caring, there can be no sense of community.cartmansmom understands without a sense of caring, there can be no sense of community.
Thanks. We are trying to get into genetics to test for Mitochondrial Diseases as well, but the next available is MAY 6th! Holy crappers. I'm trying to see if our Neurologist can get us in sooner. We go for the CF test next week, along with a scope for other issues. The hard part is that his recent chromosomal work up came back normal so I thought we were done and just work through his therapies and treat symptomatically, but now his GI is "very concerned" so more testing.
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